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The tragic case of Charlie Gard?
Topic Started: Jul 9 2017, 06:06 PM (769 Views)
* Mitas
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It truly was a Shawshank redemption

Political Piper
Jul 11 2017, 08:04 PM
Nobody has the right to play God. I truly hope you guys don't find yourself in a situation where you get sick and you want to try to get treatment and the Government says no, you have to die. Your life isn't worth the money or the hassle of the doctors to try and treat you.
Again, you seem to be missing the entire point of this case and are putting words in our mouths in the process. This:
Quote:
 
in a situation where you get sick and you want to try to get treatment and the Government says no, you have to die.

is not what is happening here, and nor is it something anyone in this thread is advocating for. Charlie Gard is incapable of saying whether he wants to try to get treatment or not, whether he wants to undergo the risks. THAT is the issue. Because the patient is incapable of making that decision, the responsibility needs to fall to another party; the debate is about who that party should be. Regardless of whether it's the government, the doctors, the family; none of those people are the patient, so somebody is playing God, as you put it. It's about who that person is, and I argue that the doctors and the state are more qualified than the parents and more likely to act in the best interests of the patient.

At no point did anybody say that if a patient is of sound mind and able to converse that their wishes be ignored in favour of the opinions of the doctors and/or the state. That is, of course, ludicrous.
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"Then you've got the chance to do better next time."
"Next time?"
"Course. Doing better next time. That's what life is."
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Tinny
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I will say this. reading the actual ruling, it seems that the parents at first agreed that his current life isn't worth sustaining. The hospital was about to attempt it when his condition worsened and I quote "his epileptic encephalothy was such that his brain damage was severe and irreversible that treatment was potentially painful but incapable of achieving anything positive for him."
The doctor who was offering said treatment also said that "it is very unlikely that he will improve with that therapy. It is unlikely." He has said he'd pay for the treatment, but also that he never tried it on anyone who had encephalopathy. The nucleoside therapy has also been unanimously agreed that it won't reverse the structural brain damage, and while the medical community will benefit from this, Charlie himself, as the court record states, will not.


It looks to me like Charlie Gard is going to die no matter what, and from what I can tell on a brief overview everyone seems to agree on this, and that the question to be had here, is where is Charlie Gard going to die, at home, or in the hospital. And the choice here, in either direction, is not something I can fault any party for choosing, at this point it is where the patient where be most comfortable before death.

Like I just said, I do not blame the courts or parents for any decision reached here, but I do think that in Charlie Gard's best interests, that he doesn't undergo a care treatment that no one believes will work and will only benefit the medical community in that they see the effect it has, and that he doesn't go home, given that he's a baby and probably couldn't recognize home beyond his parents and any friends and family (if were to have complete control, I'd let anyone that the Gards considered to be friends and family members to Charlie Gard to visit, paying for any expenses along the way).


It's a horrible position for anyone to be in, and I can't really hold out condemnation for any party making these decisions. Charlie Gard is going to die, and having him subjected to an experiment treatment just to see what happens before he finally dies is... Well I think a lack of consent should be assumed until the patient says otherwise.

P.S.

Political Piper, from what I can tell there is no life (even a small chance at it) and death here, there is only death, and where the baby is going to be when they finally die. Whether it's in a lab in America, in a hospital in Britain, or at their home. The universal healthcare seems about as related as going after a gun manufacturer after a shooting. It is misplaced politics Political Piper, the real question here, is whether he should die in the hospital, the home, or in America for the benefit of science.
Edited by Tinny, Jul 11 2017, 11:27 PM.
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